They could be hills, not mountains - but they're big and snowy. Yep it's cold here.

Most of the day so far has involved cleaning, tidying, and general duties. Catch up from the weekend when I allowed creative pursuits to take over.

One of the weekend highlights was chatting with Tony over coffee... the music industry and publishing industry are very similar and take equal amounts of hard work and perseverance to break into. It's nice to talk to someone who is facing similar challenges. Especially someone as creative as Tony.
We both do far more in the winter than in the summer. I think its that there are less distractions... the sun is quite a distraction and neither of us are keen on being couped up on sunny days! - and there is also the whole Christmas thing and school being out for 6 weeks... that alone will suck the creativity from me.

Although I do tend to come up with creative ways of silencing the Oh look Squirrels child.
Speaking of which, she's been diabolical lately. I'm thinking her medication needs adjusting... it's wearing off way too early, on the way home from school - so I don't get any benefit from it. The dippy teacher sees the cooperative, clued-in, organized, animated, focused -- 
Child.
I get the child who drifts off into space, can't hear anyone, can't follow simple instructions, doesn't do as she's asked... and so much more. It's frustrating as hell.

We have another specialist appointment on Wednesday afternoon - a chance to get our specialist to write a nicely worded yet threatening letter to the school. The teacher, has decided no one is allowed to drink water during class... Caoilie must drink... so she MAKES her get up and go stand by the school bags to do so. - So Caoilie won't drink. The teacher has decided kids aren't allowed to go to the toilet during class time - so Caoilie won't ask - and that has set us back about two years in the treatment of her bowel condition.
Pick the pissed off parent!
We were so close to Caoilie being able to do things like normal nine year olds... and then this idiot woman comes along and intimidates her so much she's gone backwards. - Plus, she's not being taught the way SHE needs to be taught to take full advantage of the medication. And then this woman has the fucn cheek to comment on how much time Caoilie has off school sick!!! There isn't a fucn thing anyone can do about that. She's at a BIG school with lots of viruses floating about and a screwed immune system... and I can't trust anyone there to provide adequate medical care so when she starts to get sick she is kept home until I am sure she isn't going to end up in Hospital. I'm certainly not about to trust a teacher to get an ambulance when that same teacher has said "She's doing much better at school now (re the medication for ADD) so she probably won't be having so many sick days." -
Caoilie can go from a slight cough to suddenly being unable to breath within about half an hour... and the medical opinion is that the teachers statement was very dangerous.

A big fucn thank you to the government for closing the best school in the area and removing our educational choice. We're now stuck with a school that isn't good for Caoilie, at all. If she didn't need to socialize with others I'd be home schooling her now.

Okay I'm done whining! LOL

It's just so damned frustrating to deal with someone who thinks they know best ... and in reality the person knows fucn nothing about my child and her very complicated medical situation.  Caoilie is considered severely disabled... yet this teacher doesn't get that not all disabled kids have obvious disabilities - it's the quantity of care a child requires for their ages group that determines disability level. We have a nine year old who cannot go stay over at friends places, go on camp, go anywhere without one of us or someone we trust, must be watched and monitored closely especially while taking her daily medication  (it's a fairly long list)- because she will ditch it if given the opportunity, she doesn't know the difference between a pushing someone and touching someone - consequently she cannot be left alone with her little sister. Simple things that everyone does every day - She will not do without supervision because she gets side tracked, or doesn't want too (lol), she can become hysterical over pretty much anything at pretty much anytime.
She has a severe bowel disorder, allergic croup -set off by grasses and dust mites, is allergic to two antibiotic groups, and is prone to viral croup (rapid onset and occurs four to five times a year requiring hospital treatment), and she's asthmatic..., LOL.
And it is not helpful to have someone suggest she won't get sick because she is doing better at school!! That's just plain ignorant. Man I'm more pissed off than I thought!

So I wasn't quite done! I'm done now!!!

Maybe...

But what that list and the title severe disability doesn't say is... this is about a wonderful caring creative funny child - who is much loved and tries my patience at every turn! LOL